M is for Mighty

What are those letters M. S. about?

Catching up…

9/5/13

August was a crazy busy month for us at work and at home, so the blog has been neglected.

We are 5 weeks and 4 days in with Tecfidera – take two.  The probiotics are working great!  We got really lucky and hit the nail on the head on our first try.  (Lactobacillus Plantarum) In fact, the flushing has even subsided!

The down side of Tecfidera is that you really have no idea if it is working or not.  It’s job is to reduce the frequency of the flares.  It doesn’t take away symptoms, and it doesn’t prevent flares completely. I guess we just go on faith that the researchers did their job in the double blind studies.

On a Tecfidera forum that we frequent there have been reports of people noticing tingling in their feet.  It is hard to know what is just the MS and what could be the Tec.  We have been battling the foot tingle since this whole adventure started back in February.  It is always there to some degree, but varies in intensity like a rolling wave. 

Similarly, people talk often about “squirrel brain” which seems to accompany MS.  Have you seen the movie “Up?”  In the movie, there is a dog named Doug who continually distracts and interrupts himself .  In particular, he loves balls and squirrels.  If he sees a squirrel, he will drop everything to go chase it.  There seems to be less of a pattern to the MS mind.  All of the great intellect will be rolling right along and then, “SQUIRREL!” …. What? Exactly! Who’s on first?!?!?

Conversations around our house are interesting and often entertaining.  I am not sure if we have ever laughed so hard as with some of these “squirrel talks” by the end of which neither of us remembers the point or original topic!  Laughter is wonderful medicine and a great stress reliever. 

My challenge to you:  Every day, find ten things for which you are thankful.  If you are not thankful for the little things, then you have nothing.

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